Thursday, January 29, 2009

Progress once again

It would seem the Avastin is working well. The CA125 count is hovering around 17-21 which is normal on both scales accepted now for this protein in the blood. One scale, the traditional scale holds under 35 as normal and the newer scale uses 21 as the max. I'm having no discomfort or pain and the side effects are particularly mild. The most persistent difficulty is the continued weakness in my thighs. It's a deep bone fatigue that makes it hard to stand, walk or do physical activity for any length of time. So I am learning to pace myself when active and doing things that can be done easily sitting down.

I have a terrific support team that helps me with the heavier cleaning to keep on top of the household and odd jobs around the home. I am continually grateful for these blessings.

Friday, January 23, 2009

The Sun

I noticed yesterday the sun is coming in closer in its orbit. I feel more warmth from it and notice it is more directly in my line of sight again. I miss the summer's sun during this cold season. Our new house has many windows which bring in much light, but on cloudy stormy days nothing seems to help.

Next week, I am scheduled for a third treatment of Avastin. This drug doesn't seem to have the side effects of other chemos other than fatigue. I take naps more frequently now. The CA125 is down to 17, remember under 35 is normal, and other counts are holding steady.

We are now officially half way through the school year. I remember with homeschooling how we'd count the days to 90 til we could celebrate this date. With my oldest, of course, his first semester at college ended before the holidays. He's now swept up into another semester of challenging courses. The younger two are doing well. They are signing up for spring sports which is yet another sign that winter is passing.

I've been dreaming of a week at the shore during the winter season. A quiet retreat to comtemplate, write and savor the shore at a different time of year. Some have told me the shore on off season is a delight. I think a vacation would help. I feel a rambly prowling spirit which may be a bad case of cabin fever.

Friday, January 9, 2009

A New Year

2009 begins on a brighter note than I would have anticipated just a few months ago. Back in October and November with daily increasing symptoms of disease, discomfort and distress I had begun to consider this year as my last year to enjoy with family and friends. I had set aside any plans for future projects and dreams. Now with a successful perientesis which removed three litres of fluid from my abdomen, stabilized CA125 and a new treatment plan I am feeling strong again.

The children are doing well in school. Their studies have improved tremendously and the teachers remark on their confidence and maturity. We enjoyed a wonderful Christmas with lights and presents and time together. Daughter participated in a live Nativity this year and both children performed in the Christmas orchestra concert. What a delight.

Now with a layer of ice on the ground and possibly more snow to come, I am looking forward to some new garden plans for the spring. Various fruit plants including some sweet rhubarb and some everlasting strawberries. I've always dreamed of having a small fruit farm. This will be small but also futuristic. I like that perspective right now. New perenniel plants as well. I look out at my drab sticks of garden now, shooting out from the wet snow and ice where soon color will burst forth. I can't wait.